Hemochromatosis Genetic Screening

Other Places To Get Help

Organizations

American Hemochromatosis Society
4044 W. Lake Mary Blvd., Unit #104, PMB 416
Lake Mary, FL  32746-2012
Phone: 1-888-655-IRON (1-888-655-4766)
(407) 829-4488
Fax: (407) 333-1284
E-mail: mail@americanhs.org
Web Address: www.americanhs.org
 

The American Hemochromatosis Society is a nonprofit organization that provides general information about hemochromatosis and genetic testing for this condition. Educational brochures are available, as well as a newsletter, physician referrals, an online support group, and medical information.


Iron Disorders Institute
2722 Wade Hampton Boulevard
Suite A
Greenville, SC  29615
Phone: 1-888-565-IRON (1-888-565-4766)
Fax: (864) 292-1878
E-mail: PatientServices@irondisorders.org
Web Address: http://www.irondisorders.org
 

The Iron Disorders Institute (IDI) is a nonprofit health agency founded in 1996. The IDI provides information about disorders of iron such as hemochromatosis, acquired iron overload , sickle cell anemia, juvenile hemochromatosis, African siderosis, thalassemia, porphyria cutanea tarda, sideroblastic anemia, iron deficiency anemia, and anemia of chronic disease.


National Digestive Diseases Information Clearinghouse (NDDIC)
2 Information Way
Bethesda, MD  20892-3570
Phone: 1-800-891-5389
Fax: (703) 738-4929
E-mail: nddic@info.niddk.nih.gov
Web Address: www.digestive.niddk.nih.gov
 

This clearinghouse is a service of the U.S. National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the U.S. National Institutes of Health. The clearinghouse answers questions; develops, reviews, and sends out publications; and coordinates information resources about digestive diseases. Publications produced by the clearinghouse are reviewed carefully for scientific accuracy, content, and readability.



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Author: Jan Nissl, RN, BSLast Updated: April 30, 2007
Medical Review: Anne C. Poinier, MD - Internal Medicine
Brian Leber, MDCM, FRCPC - Hematology

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Topic Contents
 What Is Hereditary Hemochromatosis?
 What Causes Hereditary Hemochromatosis?
 What Is Hemochromatosis Genetic (HFE) Screening?
 Who Should Be Screened?
 Is Screening Accurate?
 Should I Be Screened?
 Why Not Be Screened?
Arrow PointerOther Places To Get Help
 References
 Credits