Phenylketonuria (PKU)

Other Places To Get Help

Organizations

Children's PKU Network
3790 Via De La Valle
Suite 120
Del Mar, CA  92014
Phone:	1-800-377-6677 (858) 509-0767
Fax:	(858) 509-0768
E-mail:	pkunetwork@aol.com
Web Address:	www.pkunetwork.org
The Children's PKU Network is a nonprofit organization that offers networking services, resources, a hotline, and family support.
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY  10605
Phone:	(914) 997-4488
Web Address:	www.marchofdimes.com
The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.
National PKU News
6869 Woodlawn Avenue NE
Suite 116
Seattle, WA  98115-5469
E-mail:	schuett@pkunews.org
Web Address:	www.pkunews.org
This organization publishes a newsletter, maintains a Web site, and develops other PKU-related material (such as diet information and recipes) for people with PKU and for their families. Their Web site has news and information about PKU, including information on therapies, a PKU e-mail discussion group, and links to other PKU-related Web sites.

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Author:	Debby Golonka, MPH	Last Updated: February 27, 2008
Medical Review:	Michael J. Sexton, MD - Pediatrics Thomas Emmett Francoeur, MDCM, CSPQ, FRCPC - Pediatrics
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