Congenital Hydrocephalus

Other Places To Get Help

Organizations

Hydrocephalus Foundation, Inc. (HyFI)
910 Rear Broadway
Route 1
Saugus, MA  01906
Phone:	(781) 942-1161
E-mail:	HyFII@netscape.net
Web Address:	www.hydrocephalus.org/
The Hydrocephalus Foundation, Inc., is a nonprofit organization that provides support, educational resources, and networking opportunities to people with hydrocephalus and their families. The foundation also promotes related research.
National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD  20824
Phone:	1-800-352-9424 (301) 496-5751
TDD:	(301) 468-5981
Web Address:	www.ninds.nih.gov
The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It also provides the public with educational materials and information about these disorders.
Hydrocephalus Association
870 Market Street
Suite 705
San Francisco, CA  94102
Phone:	1-888-598-3789 (415) 732-7040
Fax:	(415) 732-7044
E-mail:	info@hydroassoc.org
Web Address:	www.hydroassoc.org
The goal of the Hydrocephalus Association is to ensure that families and individuals dealing with the complex issues of hydrocephalus receive personal support, comprehensive educational materials, and ongoing quality health care. This nonprofit group promotes the importance of medical research. And it has many services and resources for both members and nonmembers.
Hydrocephalus Support Group (HSG)
P.O. Box 4236
Chesterfield, MO  63006-4236
Phone:	(636) 532-8228
Fax:	(314) 251-5871
E-mail:	hydrodb@earthlink.net
This is a nonprofit organization providing education and support to people with hydrocephalus and their families. HSG publishes a quarterly newsletter, provides parent referrals, sponsors meetings and conferences, and offers a library with more than 150 articles and tapes on hydrocephalus.
National Hydrocephalus Foundation (NHF)
12413 Centralia Road
Lakewood, CA  90715-1653
Phone:	1-888-857-3434 (562) 924-6666
E-mail:	nhf@earthlink.net
Web Address:	www.nhfonline.org
The National Hydrocephalus Foundation (NHF) is a not-for-profit public service organization that aims to increase public awareness and knowledge of hydrocephalus. The organization also promotes and supports research on the cause, treatment, and prevention of hydrocephalus. In addition to providing the public with informational pamphlets, the NHF maintains a reference library and videos on hydrocephalus, offers support groups, and publishes the quarterly newsletter LIFE LINE.

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Author:	Debby Golonka, MPH	Last Updated: February 6, 2008
Medical Review:	Michael J. Sexton, MD - Pediatrics Mark G. Luciano, MD - Neurological Surgery
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