Sjögren's SyndromeOther Places To Get HelpOrganizations| National Institute of Neurological Disorders and Stroke
(NINDS) | |
P.O. Box 5801 | | Bethesda, MD 20824 | | Phone: | 1-800-352-9424 (301) 496-5751 | | TDD: | (301) 468-5981 | | Web Address: | www.ninds.nih.gov | | | The National Institute of Neurological Disorders and Stroke
(NINDS), a part of the National Institutes of Health, is the leading U.S.
federal government agency supporting research on brain and nervous system
disorders. It also provides the public with educational materials and
information about these disorders. |
| | American Academy of Ophthalmology
(AAO) | |
P.O. Box 7424 | | San Francisco, CA 94120-7424 | | Phone: | (415) 561-8500 | | Fax: | (415) 561-8533 | | Web Address: | www.aao.org | | | The American Academy of Ophthalmology (AAO) is an association of
medical eye doctors. It provides general information and brochures on eye
conditions and diseases and low-vision resources and services. The AAO is not
able to answer questions about specific medical problems or conditions. |
| | American Autoimmune Related Diseases Association
(AARDA) | | 22100 Gratiot Avenue | | East Detroit, MI 48021 | | Phone: | (586) 776-3900 | | E-mail: | aarda@aol.com | | Web Address: | www.aarda.org | | | This national nonprofit health agency is dedicated to
curing autoimmune diseases and relieving the suffering and the economic and
social impact of autoimmune diseases. AARDA brings professionals together in
the areas of education, research, and patient services, and sponsors
physicians' conferences, research, legislative advocacy, and a national
awareness campaign. |
| | American College of Rheumatology | | 1800 Century Place | |
Suite 250 | | Atlanta, GA 30345 | | Phone: | (404) 633-3777 | | Fax: | (404) 633-1870 | | Web Address: | www.rheumatology.org | | | The American College of Rheumatology (ACR) and the
Association of Rheumatology Health Professionals (ARHP, a division of ACR) are
professional organizations of rheumatologists and associated health
professionals who are dedicated to healing, preventing disability from, and
curing the many types of arthritis and related disabling and sometimes fatal
disorders of the joints, muscles, and bones. Members of the ACR are physicians;
members of the ARHP include research scientists, nurses, physical and
occupational therapists, psychologists, and social workers. Both the ACR and
the ARHP provide professional education for their members. The ACR
Web site offers patient information fact sheets about rheumatic diseases, about
medicines used to treat rheumatic diseases, and about care
professionals. |
| | National Eye Institute, National Institutes of
Health | | Information Office | | 31 Center Drive MSC 2510 | | Bethesda, MD 20892-2510 | | Phone: | (301) 496-5248 | | E-mail: | 2020@nei.nih.gov | | Web Address: | www.nei.nih.gov | | | As part of the U.S. National Institutes of Health, the National Eye
Institute provides information on eye diseases and vision research.
Publications are available to the public at no charge. The Web site includes
links to various information resources. |
| | Sjögren's Syndrome Clinic | | National Institute of Dental and Craniofacial Research, National Institutes of Health | | Bethesda, MD 20892-2190 | | Phone: | (301) 402-7364 | | Fax: | (301) 480-4098 | | E-mail: | nidcrinfo@mail.nih.gov | | Web Address: | www.nidcr.nih.gov/Research/Intramural/Molecular_Physiology/SjogrensSyndrome/SjogrensSyndromeClinic.htm | | | This clinic conducts basic and clinical research on
salivary function and Sjögren’s syndrome and is located in the Molecular
Physiology and Therapeutics Branch, National Institute of Dental and
Craniofacial Research (NIDCR), National Institutes of Health (NIH) in Bethesda,
Maryland. |
| | Sjögren's Syndrome Foundation | | 6707 Democracy Blvd. | |
Suite 325 | | Bethesda, MD 20817 | | Phone: | 1-800-475-6473 | | Fax: | (301) 530-4415 | | Web Address: | www.sjogrens.com | | | This nonprofit foundation educates both health
professionals and people with Sjögren's syndrome about the disease. It also
produces and distributes educational materials, including the Moisture Seekers newsletter, handbooks, videos, and medical
articles. A network of chapters, support groups, and contacts organizes
meetings, participates in health fairs, increases awareness in their community,
and promotes local media campaigns. The foundation sponsors educational
programs, symposia, and workshops; provides physician and dentist referrals;
and advocates for research and treatment centers. |
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