Self Help Clearinghouse

Joubert Syndrome

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Joubert Syndrome Foundation and Related Cerebellar Disorders

International network. 7 chapters. Founded 1992. Sharing of knowledge, experience and emotional support for parents of children with Joubert syndrome and related cerebellar disorders. Aims to educate physicians and support team. Group offers a newsletter and a biennial conference.
Write:
Joubert Syndrome Fdn.
6931 South Carlinda Ave.
Columbia, MD 21046
Voice: 410-997-8084
Fax: 410-992-9184
Website: http://www.joubertsyndrome.org
E-mail: joubertduquette@comcast.net
Verified: 04/17/2006

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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