Waldmann Disease

Important
It is possible that the main title of the report Waldmann Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

Dysproteinemia, Familial
Enteropathy, Hypercatabolic Protein-Losing
Familial Hypoproteinemia with Lymphangietatic Enteropathy
Hypoproteinemia, Idiopathic
Intestinal Lymphangiectasia
Intestinal Lymphangiectasis
Lymphangiectasia, Primary Intestinal
Lymphangiectasis, Primary Intestinal
Lymphangiectatic Protein-Losing Enteropathy
Lymphedema, Neonatal due to Exudative Enteropathy
Protein-Losing Enteropathy Secondary to Congestive Heart Failure

Disorder Subdivisions

None

General Discussion

Waldmann Disease is a rare digestive disorder characterized by abnormally enlarged (dilatation) lymph vessels supplying the lining (lamina propria) of the small intestine. The main symptoms are abdominal discomfort and swelling of the limbs. The disorder may be present at birth (congenital) or acquired.

Resources

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)428-7100
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

National Lymphatic and Venous Diseases Foundation, Inc.
70 Heritage Ave
Unit 9
Portsmouth, NH 03801
USA
Tel: 6033348600
Fax: 6033346464
Tel: 8003012103

NIH/National Digestive Diseases Information Clearinghouse
2 Information Way
Bethesda, MD 20892-3570
Tel: (301)654-3810
Fax: (301)907-8906
Tel: (800)891-5389
Email: nddic@info.niddk.nih.gov
Internet: http://www.niddk.nih.gov

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)519-3194
Fax: (240)632-9164
Tel: (888)205-2311
TDD: (888)205-3223
Email: gardinfo@nih.gov
Internet: http://www.genome.gov/100000409 or http://rarediseases.info.nih.gov/html/resources/info_cntr.html

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 1/14/2000
Copyright 1986, 1988, 1990, 1993, 2000 National Organization for Rare Disorders, Inc.

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